Suicide. A 3 syllable, 7 letter word that is not talked about. The moment it’s
mentioned people turn the other cheek. They become uncomfortable and
honestly believe it will cause suicide. Suicide isn’t a contagious word. It is a
word that starts a conversation. A conversation that opens eyes to the
reality of the pandemic of the final symptom of depression which is suicide.
This word is preventable. This word deserves equality, love, and compassion
just like any other symptoms of an illness.
Over 12 years of my life I battled with this. I battled with endless
hopelessness, a product of institutionalization in and out of psychiatric care
watching the horrors of a broken system. The shame and stigma surrounding
me led to barriers in my own healing, and setbacks that were life
threatening. Suicide seen as attentioning-seeking, a choice, and selfish which
is the very conversation used to talk about mental health. Those statements
promote silence in the already internal battle that 1 in 3 people face, and
that anyone you know could be heavily affected from this harmless dialogue
that easily comes out of peoples mouths the moment someone is struggling.
Many people talk about how “mental health matters”. But “mental health
matters” until someone is actually struggling with their mental health.
I emphasize so much on the reality of my story, losing someone I loved, and
the society we live in because it is not uncommon, it is why we face these
problems today, and ACTUALLY identifying the problem is the first step in
changing policy, changing the conversation, saving lives while simultaneously
sparring loved ones from the the unbelievable pain that comes from that
loss. It is not impossible to dig yourself out of the trenches and go to the
other side. I am living proof. I have had opportunities to create change in a
variety of ways not only all over the state of Connecticut, but at National
Levels. I found community, and purpose in advocacy. I urge the importance
of spreading kindness and opening doors to opportunities for community
within each other today. You may save the life of someone in this crowd, it
may be something you needed today to get through or both.
I wrote a poem I am going to share with you in honor of my best friend
Dakota Rose who I knew almost my entire life that died by suicide on
November 1st, 2022.
Who faced unbelievable challenges she was struggling to navigate. Who loved
unconditionally, who could make you laugh, could have in depth conversations,
who was very, very loved especially by me.
She did not get a funeral, did not get a celebration of life, and did not have
a memorial, or even recognition. Those who have physically illnesses do, but
more commonly then not those who have died by suicide do not get the
recognition of life that they deserve due to the stigma and shame.
But I recognize her everyday.
I honor her here. I honor myself and my journey. I honor those currently
struggling in silence, those who have conquered those obstacles, and I honor
those who are no longer here.
Dakota had multiple disabilities which increased her risk of suicide. Many
times those with disabilities are overlooked. In young adults (without
disabilities) it is the 3rd leading cause of death in North America. This is
not only increasing but is even higher with those with disabilities.
Many times those with disabilities are not recognized for having mental health
struggles due to their overshadowing condition. Some factors that may lead
to suicide attempts and deaths is:
● Lack of access to education or employment opportunities
● High rates of trauma, abuse and bullying
● Increased dependence on caregivers
● Impulsivity and emotional dysregulation
● Social exclusion and stigma
For Dakota Rose
(A Poem of Grief, Love, and Suicide Loss)
The world was brighter when you grinned,
A laugh like sunlight, wild and unpinned.
You were the breeze that danced on summer’s edge,
The quiet joy in each small pledge.
But grief, it comes like autumn’s chill,
A season too cold for hearts to fill.
At 21, your spark went out too soon,
Leaving us searching by the fading moon.
No funeral, no flowers laid in line,
No stories shared, no tears to unwind.
You left quietly, no page to turn,
No tribute for a soul to yearn.
Yet the butterflies, oh, they flew to me—
Delicate wings in a fall breeze,
As if they knew your spirit still roamed,
A silent whisper from a place unknown.
And in my garden, roses bloomed—
A love too deep for grief to consume.
They held you, Dakota, in their quiet grace,
A reminder of your light, your face.
They say we don’t talk, it’s not allowed,
The silence suffocates, the shame is loud.
But your voice, it echoes through the night,
A shout for change, a need for light.
You were more than a loss, more than the pain,
More than the words we cannot explain.
And though you’ve gone, your love remains,
A flame that burns in all our veins.
Dakota Rose, you’re more than a scar—
You are the shining, distant star.
Your life deserves to be heard, to be seen,
To be honored in a world so keen.
The stigma must break, the walls must fall,
For every soul who answers the call.
Your name deserves to ring in the air,
For all the love and light you shared.
Rest now, dear friend, in skies so wide,
in every sunset and sunrise.
Your laughter lives in the wind’s sweet hum,
And we will fight for you, until change comes.
September is Hydrocephalus Awareness Month. Hydrocephalus is a neurological condition caused by an abnormal buildup of cerebrospinal fluid within the ventricles or brain cavities. It’s controlled by a device called a shunt that regulates the flow of the fluid. Hydrocephalus can be present at birth or acquired afterward. Both children and adults can have this condition. There are communities online where people with the condition and their families can connect and which can help families and individuals. Head injuries, intraventricular hemorrhage aka strokes, or brain tumors are some causes of the condition. Some symptoms of untreated hydrocephalus in children are headaches, blurred vision, and balance issues, as well as cognitive issues. My connection with this condition is that I had a stroke at birth and a brain bleed that led to multiple disabilities, including hydrocephalus. As a small, premature infant, I had multiple surgeries until the neurosurgeons could finally get ...


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